1/30/10
Saturday, January 30th, 2010
Current residents: I think we have three people in my pod attached to alarms that go off every time they try to stand up, so lots of beeping and babysitting in the vicinity. Mildred the crazy talker is still here. One lady I thought was “normal” and went to strike up a conversation with, told me she has 8-3/4 kids. “We started with two, and now we have eight and three quarters.” Further attempts at conversation proved that she is not, indeed, “normal.” There is one old man who can’t communicate but is always trying to wheel himself (at a snail’s pace) into my room. Even when I’m not in here. There are so many old, sad people sitting out in the TV room at any given time it’s a depressing sight to see. I mostly hole up in my room and surf the ‘net. Except when my Soap is on. There is another lady here that watches Days so between the two of us we make sure the TV is on channel 7 by 1:00! Now I can delete all the saved up episodes on my PVR, I think I’m pretty much caught up. It doesn’t take long, a few minutes/week is all you really need. But what happened to Nicole? She was in prison for the kidnapping but I don’t know how they wrote her off (for now). I know she’s having a baby in real life so I expect she’ll be back.
AH called me tonight. “What is it you like? A mocha?” Soy vanilla latte! He showed up moments later with Starbucks and had all the female staff in my pod a flutter. A young, tall, dark and handsome man in a nice suit doesn’t come this way very often. He couldn’t stay long (of course, always on the run) but it was so nice of him to drop by. With a latte, no less. I’ve had more lattes while staying here than I ever did at home! Tee hee. The other night I talked to him about the kitties, and told him he should take them. “My wife is HIGHLY allergic”. I said, jokingly, “well, get rid of her” and he said, not so jokingly, “I’m working on it”. He then told me a little about what is going on at home right now, and it looks like there could be another separation happening there. No big surprise, but we’ll see how long this one lasts.
I don’t think having a latte at 6:30 pm was the smartest move ever.
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That was written yesterday. It is now Saturday night and I recently got back from an 8 hour visit to my home! I got lots of work done! I cuddled kitties! I didn’t cry! I walked lots! The swelling in my feet went waaaay down! I used my Chi Machine! Of course the swelling will come back by tomorrow, but it was nice to see all I need to do is sit in my lift chair with my feet up and walk to and from the bathroom a few times to get it down. Oh, and I’m sure my Chi Machine helped. Man, I miss that thing.
I figured out that if I can move into an apartment with wider doorways/wheelchair access to my office and bathroom, I could definitely manage at home with a little more home care. Even just another hour at night. I’d even be able to work more, sitting in my comfy power chair. It would be so much better than assisted living. I’d keep my independence and my cats. I’m going to talk to them AGAIN about self-managed care. I don’t care about all the reasons they said it wouldn’t be good for me, I think I have many reasons why it would be good. And it’s cheaper for the Province to fund me for that, then it would be to live in assisted living or a group home.
Nick has come by my room the past couple of nights, just to yack. The staff over here give him a hard time when they see him in my room; the staff on his pod could care less if I’m visiting him. I think it’s because my room is very open and everyone can see in here, whereas he is tucked away in a corner where no one notices. Although Nick says the staff over here are busy bodies who need more to do lol
We were talking last night about living arrangements, and Nick said “you have to keep your independence”. He’s right. I talked about the Law of Attraction, and how the more help I started getting, and once my dad came back into my life and started doing everything without me asking him to, I lost the ability to do it. He said that is exactly what happened to him, that when he moved in with his dad and stopped doing a lot for himself because his dad did it (housework, shopping) he lost more and more until he ended up here. Very familiar story! Unfortunately, we can’t tell people to STOP helping us now, because we really have lost the ability to do this stuff ourselves. But the more we can do, and try to do, the better. I growled at my dad today when he went to lift my right leg out of the car before I even tried to do it myself, first. I have to teach him to stand back and watch me try, first, then help only if I can’t. Instead of always being 3 steps ahead of me and doing stuff for me before my head has even registered that I need to do it.
That’s why even though I grunt, groan and bitch every time I get myself to the bathroom here and need to one-handedly pull up these damn Pull-Up thingys AND my pants, and get myself back into my wheelchair and do my best to get my right foot up on the foot rest, I won’t stop doing it. I am the one that asked to get out of the diapers and into the pull-ups so I could try on my own! And yesterday I didn’t even need a nurse’s assistance to get my foot back into the right place. I’ve been 100% independent in the toilet so that’s pretty big news around these parts. I made sure they documented it!
Tom still hasn’t been in the dining room for meals, so I went to visit him today. He had been moved to a private room, and there were paramedics in with him. Yikes. I tried to go again later, but the paramedics were still there talking to him and said they were “taking him somewhere”. That’s not good. Chuck has been replaced at our dining table by Rick, who it turns out used to be one of Nick’s teachers. He has Parkinson’s disease and his wife (who also has MS!) is his primary caregiver, who has been hospitalized so Rick is here until she’s raring to go again. I just hope they don’t meet the same fate as Clive and his wife. Clive was the man who sat at my dining table in the care center in 2006, who also had Parkinson’s, who had been a teacher of mine, whose wife was his caregiver… but they had to be split up because of their different care needs. That’s a part of marriage you just don’t see coming. You’re supposed to take care of each other until you die, right?
Rick drools a lot. I told him on Monday he’d get the rounds of physio assessment, exercise options, see a doctor… he told me he gets his exercise by rescuing drool lol
I brought my memory card from my camera with a bunch of un-uploaded cat photos on it. I need to go through that tomorrow! If I have time between my mom coming to spend the day, and Shawna coming to give me a shower around 4:00. Shower! Whee!
Current residents: I think we have three people in my pod attached to alarms that go off every time they try to stand up, so lots of beeping and babysitting in the vicinity. Mildred the crazy talker is still here. One lady I thought was “normal” and went to strike up a conversation with, told me she has 8-3/4 kids. “We started with two, and now we have eight and three quarters.” Further attempts at conversation proved that she is not, indeed, “normal.” There is one old man who can’t communicate but is always trying to wheel himself (at a snail’s pace) into my room. Even when I’m not in here. There are so many old, sad people sitting out in the TV room at any given time it’s a depressing sight to see. I mostly hole up in my room and surf the ‘net. Except when my Soap is on. There is another lady here that watches Days so between the two of us we make sure the TV is on channel 7 by 1:00! Now I can delete all the saved up episodes on my PVR, I think I’m pretty much caught up. It doesn’t take long, a few minutes/week is all you really need. But what happened to Nicole? She was in prison for the kidnapping but I don’t know how they wrote her off (for now). I know she’s having a baby in real life so I expect she’ll be back.
AH called me tonight. “What is it you like? A mocha?” Soy vanilla latte! He showed up moments later with Starbucks and had all the female staff in my pod a flutter. A young, tall, dark and handsome man in a nice suit doesn’t come this way very often. He couldn’t stay long (of course, always on the run) but it was so nice of him to drop by. With a latte, no less. I’ve had more lattes while staying here than I ever did at home! Tee hee. The other night I talked to him about the kitties, and told him he should take them. “My wife is HIGHLY allergic”. I said, jokingly, “well, get rid of her” and he said, not so jokingly, “I’m working on it”. He then told me a little about what is going on at home right now, and it looks like there could be another separation happening there. No big surprise, but we’ll see how long this one lasts.
I don’t think having a latte at 6:30 pm was the smartest move ever.
That was written yesterday. It is now Saturday night and I recently got back from an 8 hour visit to my home! I got lots of work done! I cuddled kitties! I didn’t cry! I walked lots! The swelling in my feet went waaaay down! I used my Chi Machine! Of course the swelling will come back by tomorrow, but it was nice to see all I need to do is sit in my lift chair with my feet up and walk to and from the bathroom a few times to get it down. Oh, and I’m sure my Chi Machine helped. Man, I miss that thing.
I figured out that if I can move into an apartment with wider doorways/wheelchair access to my office and bathroom, I could definitely manage at home with a little more home care. Even just another hour at night. I’d even be able to work more, sitting in my comfy power chair. It would be so much better than assisted living. I’d keep my independence and my cats. I’m going to talk to them AGAIN about self-managed care. I don’t care about all the reasons they said it wouldn’t be good for me, I think I have many reasons why it would be good. And it’s cheaper for the Province to fund me for that, then it would be to live in assisted living or a group home.
Nick has come by my room the past couple of nights, just to yack. The staff over here give him a hard time when they see him in my room; the staff on his pod could care less if I’m visiting him. I think it’s because my room is very open and everyone can see in here, whereas he is tucked away in a corner where no one notices. Although Nick says the staff over here are busy bodies who need more to do lol
We were talking last night about living arrangements, and Nick said “you have to keep your independence”. He’s right. I talked about the Law of Attraction, and how the more help I started getting, and once my dad came back into my life and started doing everything without me asking him to, I lost the ability to do it. He said that is exactly what happened to him, that when he moved in with his dad and stopped doing a lot for himself because his dad did it (housework, shopping) he lost more and more until he ended up here. Very familiar story! Unfortunately, we can’t tell people to STOP helping us now, because we really have lost the ability to do this stuff ourselves. But the more we can do, and try to do, the better. I growled at my dad today when he went to lift my right leg out of the car before I even tried to do it myself, first. I have to teach him to stand back and watch me try, first, then help only if I can’t. Instead of always being 3 steps ahead of me and doing stuff for me before my head has even registered that I need to do it.
That’s why even though I grunt, groan and bitch every time I get myself to the bathroom here and need to one-handedly pull up these damn Pull-Up thingys AND my pants, and get myself back into my wheelchair and do my best to get my right foot up on the foot rest, I won’t stop doing it. I am the one that asked to get out of the diapers and into the pull-ups so I could try on my own! And yesterday I didn’t even need a nurse’s assistance to get my foot back into the right place. I’ve been 100% independent in the toilet so that’s pretty big news around these parts. I made sure they documented it!
Tom still hasn’t been in the dining room for meals, so I went to visit him today. He had been moved to a private room, and there were paramedics in with him. Yikes. I tried to go again later, but the paramedics were still there talking to him and said they were “taking him somewhere”. That’s not good. Chuck has been replaced at our dining table by Rick, who it turns out used to be one of Nick’s teachers. He has Parkinson’s disease and his wife (who also has MS!) is his primary caregiver, who has been hospitalized so Rick is here until she’s raring to go again. I just hope they don’t meet the same fate as Clive and his wife. Clive was the man who sat at my dining table in the care center in 2006, who also had Parkinson’s, who had been a teacher of mine, whose wife was his caregiver… but they had to be split up because of their different care needs. That’s a part of marriage you just don’t see coming. You’re supposed to take care of each other until you die, right?
Rick drools a lot. I told him on Monday he’d get the rounds of physio assessment, exercise options, see a doctor… he told me he gets his exercise by rescuing drool lol
I brought my memory card from my camera with a bunch of un-uploaded cat photos on it. I need to go through that tomorrow! If I have time between my mom coming to spend the day, and Shawna coming to give me a shower around 4:00. Shower! Whee!










