General Ramblings 11/15/09
Sunday, November 15th, 2009
It’s November 15, and I did it! I finished my 101 list. And by finished, of course, I mean I finished compiling it. I have a long way to go to get ‘er done!
As mentioned in my last entry, I’m headed back to the pool. I have been going twice/week, and as much as I’d like to say it’s fabulous and everything is wonderful, it hasn’t been working out that way yet. I don’t know why I thought it would be just like old times. I know I use a wheelchair now, and I know I need assistance with every little thing, and I know stairs are not my friend, so I don’t know why I thought once I got to the pool it would be the same as it was 3-1/2years ago.
On the first day, we arrived at the pool and met my caregiver Lara who was there to help me in the change room. She’s great. We got me out to the pool, I headed straight for the stairs into the pool, grabbed the rail, and FROZE. I didn’t know what to do. Stairs? It was like I’d never seen them before. I waited for my dad and with his help we got me down the stairs slowwwwwwwly and into the water. At which point I started flailing aimlessly. I wasn’t able to walk in the water, stand in the water, tread water, move my right arm or leg AT ALL. I was in shock. What was going on? The staff saw me struggling and tossed a couple foam noodles my way which my dad wrapped around me. They didn’t help much, I was still expecting to do a little deep water workout moves and couldn’t understand why my body didn’t get it. What a difference a few years makes in the world of progressive MS. I think I flailed around for a total of 7 minutes before I was exhausted and knew I’d have to get out now if I expected to tackle those stairs up. It took THREE people to help me get up those (5? 6?) stairs, and I don’t know how long, to safely land back in my wheelchair.
It was rough and I came home feeling exhausted and completely defeated. And in utter shock! What a wake up call for my body to realize just what has happened to it! The second time I went, I knew what to expect so it wasn’t as shocking. Now I know to get a foam belt on me before I hit the water, and am able to do the stairs super slow with just my dad’s help. I still flail about in the water, but I try to do some leg movements and my dad will swing my arm around for me. I only stay in 8-10 minutes because the stairs and change room are difficult and tiring, too. I’m unable to lift my right foot at ALL by the time I get out to the car. I just have to believe, that in time, I will get better at it all.
I’m very grateful my dad is available to help me with this! It’s starting to feel exciting to be back in the water, not just terrifying. I can’t wait for the day I can do those stairs without such a struggle.
Another thing that should help me is that I’ve got a NMES machine on the way, should be here next week. We found one that looks pretty good for a great price. The kind I wanted costs $1,300, so, no. I hope the one I’m getting is just as good, for only $140. The specs are similar. Fingers crossed it works for me, and isn’t too complicated to use. I’m hoping using that every day will strengthen those muscles down my right side that don t get used.
I watched some of the Gemini Awards (Canada’s “Emmy”) which happened to take place here in Calgary last night. I just found out that Cory Monteith, who stars as Finn on “Glee., is from Calgary (he was there). I can’t believe I didn’t know that before! I love Glee. I do. I’m a bit of a Gleek. Even downloaded the soundtrack onto my iPod. Other new shows I’m into are Modern Family and Community. I love me some laughs.
Music Minute! My friend Peter Katz has a new CD coming out… soon, I’m not sure when exactly, but Glen Hansard sings on one of the tracks. Who is Glen Hansard, you ask? Why, none other than the lead singer of the Irish band The Frames and the guy who, along with Marketa Irglova, starred in Once and won the 2008 Academy Award for Best Original Song for “Falling Slowly” (and are now known as the duo The Swell Season). That’s all. I LOVE Glen Hansard and am soooooo thrilled for Peter that Glen is a fan of his work and agreed to be involved! Peter is headed for the big time. He’s so damn easy to love.
Also, my New Zealand buddy Phil Madsen released a new CD called Mr Yellow Tree that you can download on iTunes. I highly recommend checking it out! This is the guy I saw in a bar the night before I left New Zealand in 2001 (this time 8 years ago I was there! Wah!) and he (and his voice) left such an impact on me I still try to keep in touch with him and have been waiting for this CD ever since! He is one talented man.

Sweetie.

“Scratch mah belly”
It’s November 15, and I did it! I finished my 101 list. And by finished, of course, I mean I finished compiling it. I have a long way to go to get ‘er done!
As mentioned in my last entry, I’m headed back to the pool. I have been going twice/week, and as much as I’d like to say it’s fabulous and everything is wonderful, it hasn’t been working out that way yet. I don’t know why I thought it would be just like old times. I know I use a wheelchair now, and I know I need assistance with every little thing, and I know stairs are not my friend, so I don’t know why I thought once I got to the pool it would be the same as it was 3-1/2years ago.
On the first day, we arrived at the pool and met my caregiver Lara who was there to help me in the change room. She’s great. We got me out to the pool, I headed straight for the stairs into the pool, grabbed the rail, and FROZE. I didn’t know what to do. Stairs? It was like I’d never seen them before. I waited for my dad and with his help we got me down the stairs slowwwwwwwly and into the water. At which point I started flailing aimlessly. I wasn’t able to walk in the water, stand in the water, tread water, move my right arm or leg AT ALL. I was in shock. What was going on? The staff saw me struggling and tossed a couple foam noodles my way which my dad wrapped around me. They didn’t help much, I was still expecting to do a little deep water workout moves and couldn’t understand why my body didn’t get it. What a difference a few years makes in the world of progressive MS. I think I flailed around for a total of 7 minutes before I was exhausted and knew I’d have to get out now if I expected to tackle those stairs up. It took THREE people to help me get up those (5? 6?) stairs, and I don’t know how long, to safely land back in my wheelchair.
It was rough and I came home feeling exhausted and completely defeated. And in utter shock! What a wake up call for my body to realize just what has happened to it! The second time I went, I knew what to expect so it wasn’t as shocking. Now I know to get a foam belt on me before I hit the water, and am able to do the stairs super slow with just my dad’s help. I still flail about in the water, but I try to do some leg movements and my dad will swing my arm around for me. I only stay in 8-10 minutes because the stairs and change room are difficult and tiring, too. I’m unable to lift my right foot at ALL by the time I get out to the car. I just have to believe, that in time, I will get better at it all.
I’m very grateful my dad is available to help me with this! It’s starting to feel exciting to be back in the water, not just terrifying. I can’t wait for the day I can do those stairs without such a struggle.
Another thing that should help me is that I’ve got a NMES machine on the way, should be here next week. We found one that looks pretty good for a great price. The kind I wanted costs $1,300, so, no. I hope the one I’m getting is just as good, for only $140. The specs are similar. Fingers crossed it works for me, and isn’t too complicated to use. I’m hoping using that every day will strengthen those muscles down my right side that don t get used.
I watched some of the Gemini Awards (Canada’s “Emmy”) which happened to take place here in Calgary last night. I just found out that Cory Monteith, who stars as Finn on “Glee., is from Calgary (he was there). I can’t believe I didn’t know that before! I love Glee. I do. I’m a bit of a Gleek. Even downloaded the soundtrack onto my iPod. Other new shows I’m into are Modern Family and Community. I love me some laughs.
Music Minute! My friend Peter Katz has a new CD coming out… soon, I’m not sure when exactly, but Glen Hansard sings on one of the tracks. Who is Glen Hansard, you ask? Why, none other than the lead singer of the Irish band The Frames and the guy who, along with Marketa Irglova, starred in Once and won the 2008 Academy Award for Best Original Song for “Falling Slowly” (and are now known as the duo The Swell Season). That’s all. I LOVE Glen Hansard and am soooooo thrilled for Peter that Glen is a fan of his work and agreed to be involved! Peter is headed for the big time. He’s so damn easy to love.
Also, my New Zealand buddy Phil Madsen released a new CD called Mr Yellow Tree that you can download on iTunes. I highly recommend checking it out! This is the guy I saw in a bar the night before I left New Zealand in 2001 (this time 8 years ago I was there! Wah!) and he (and his voice) left such an impact on me I still try to keep in touch with him and have been waiting for this CD ever since! He is one talented man.

Sweetie.

“Scratch mah belly”

