December 29th, 2009
I had to update my blog if for no other reason than to tell you that I saw this woman, whom I’ve thought of often over the past 5+ years, tonight. We (dad and I) went to the laundry room to put my clothes in the dryer. There was an old lady in there, taking things out of the dryer and putting them on hangers. She was sitting on her walker, and looked like a resident here. My dad asked her what floor she lives on, and she said “oh, I don’t live here, my son does. I’m 90 years old and I’m doing his laundry!” I gasped and started babbling. “Has your son been here for over 35 years? Is he here because of a messed up brain surgery? I met you years ago in an Access taxi. I have repeated that story many times.” My dad helped her hang up the laundry and carried it back to her son’s room for her. This time I got her name, her son’s name, and what unit he lives in. I’ll have to go looking for him one day. Funny how I ended up living (for the time being, anyway) in the same place as her son. Funny or sad, depending on how you look at it.
I went home again for a few hours yesterday. I got the work finished I needed to before the end of the month, and of course cuddled kitties. Pita is none to happy, now that she seems to get what is going on. She was super excited to see me and both cats took turns hitting up my lap. But when it was time to go, Pita let out the whines and cries. She knows I don’t go out for “just a few hours” anymore. It’s like she was crying, “what are you doing? Where are you taking her? She just got here!” Sniff. I didn’t cry this time, though. I’m not even crying while writing about them here, this time. I’m toughening up.
Okay so several people have suggested that living here permanently (on the first floor where they have permanent long term care residents, many with MS) wouldn’t be such a bad idea. Let me make something clear: I NEED TO SHOWER MORE THAN ONCE A WEEK. That’s all they can manage here. Aside from the fact I can’t have my cats here, I NEED TO SHOWER MORE THAN ONCE A WEEK. Ideally, I’d like my own bathroom with a tub so I can set it up like at home, then all I need is someone to lift my leg over the side of the tub when I sit down, so I can shower myself. EVERY FREAKIN’ DAY. Tomorrow I have an appointment for a hair cut (and wash) and then on Thursday I get my SHOWER so at least I have some freshness to look forward to. I can’t wait!
I’ve been using my TENS/EMS machine the past few days. I still need a proper lesson on where to put the pads, but I can already tell it’s helping a little. Today at dinner I moved a finger on my right hand. Not much, but more than I’ve seen in awhile! I also lifted my own legs on to the bed tonight, which I’m not sure was because the bed was lower than usual, or EMS. I won’t get too excited until I can lift my foot to walk again, though! Today when I did my little walk with my AFO on, I noticed a big problem is I don’t (can’t) bend my right knee when I walk. My left leg goes normally and I “swing” my right leg around. That would explain my bad hips; my gait has been f*cked for years, slowly getting to this worst point. Hopefully when physio gets back into their regular routine after the holidays they will work with me on that! I used the MOTOmed for 10 minutes today, during which I told the PT Asst. that I miss the stretches home care gave me 4X/week, that my arm/hand hasn’t been stretched out since I got here. So the dear stretched out my arm and hand while I pedaled, and said she would do that every day now. Yay!
I met with the Recreational Therapist today. I told her I had seen the rec. calendar for all the Carewest facilities in the city, hanging up downstairs. Lots of outings and activities. She told me those were all for the permanent long term care residents, not for us. Boo! This unit is considered short term care, for rehab/recovery (like when I broke bones and stayed in this kind of place) and then to send you back to where you came from. Although, it has become longer term care for many, like me, who will be living here until there is an opening in a long term situation. So we deserve outings, too. The first floor even has Friday “happy hour” in the cafeteria where they serve BOOZE really cheap. We are not welcome. However, it is open to first floor residents and their families and VISITING FRIENDS, so I shall make friends with someone down there. I also found out who books the entertainment in the coliseum, so I will be talking to her about getting the Polyjesters in here. They will be a big hit with the coherant crowd!
Well, I’m off to get my beauty sleep before my haircut tomorrow. My mom is also visiting. I told my dad he is NOT allowed to come tomorrow, he needs to take a day off!!