Can You Hear Me Now?

The family (all of them - this now includes my mom, Bob my Stepdad, my Dad, my brother and his girlfriend) were all here a couple weeks ago for Thanksgiving dinner. They brought the food, of course, and the plan was to use my oven to cook and my kitchen to prepare and serve. Do these things ever work out as planned? My kitchen is not set up for food preparation because I’m not able to do it. Counter space is very limited because I need to keep the things I use the most in easy reach. There is no room for even two people to move around. The oven decided to conk out in the middle of everything. So the food ended up being served in scattered order, while we waited for the main dish to cook and microwaved what we could.

All in all, it worked out and we ate lots and there was pumpkin pie. I called the office about my oven, then two days later my dad used it (we are on a regular rotation of baking me kale chips -yum) and it worked fine. When maintenance came to look at it they found nothing wrong. And it’s been working fine ever since. Weird… but I’m happy I get my kale chips every time my dad comes over! I’ve got two huge bunches of organic kale in the fridge right now, waiting to be washed, chopped and baked. I never knew it was possible to love healthy greens so much. I highly recommend them.

I’m super, super, super excited to announce after years of hoping and wishing, I will be getting back into a swimming pool TOMORROW. Finally! I worked out a schedule with my dad to get me there and back twice/week and Home Care was able to find a caregiver that can meet me there and help me in the change room. I did go to that appointment with a physiotherapist on the 19th, but we decided their program is not right for me (and they don’t have access to an NMES machine). I’ve decided to do the pool on Mondays and Wednesdays, and apparently I can still see the P/T I was seeing a few months ago, so I’m gong to try to set up a standing Friday appointment with him. I can do only once/week there as long as I’m doing water exercises a couple other days. I’m hoping this will all help me lose weight/get stronger so I can get some independence back. I’ve lost so much recently.

My friend Shawna helped me get out yesterday with my power chair and we took a Handi-bus on a little excursion downtown! I haven’t been there in years, but it’s all a huge construction zone right now so I’m not really interested in going again for at least another year. My chair is a MUCH better ride on the Handi-bus. What a difference from my scooter. I didn’t scream or feel unsafe once! With it being colder and all, I’m not able to get myself out the door as I need help with my coat and stuff. Again, I’m hoping the pool will help my independence because not being able to come and go from my apartment without help puts a damper on my entire LIFE. I actually have a call in to a social worker to discuss my options for assisted living centres/retirement homes (that take youngsters like me). I’ve been checking out some places that have websites, and they sound a lot like Carewest Glenmore Park (see my “Wristomania” section for my adventures in that place) except obviously more private because you have your own living space. I do think I would have a better life in one of those places right now, but of course I’d rather get stronger, more independent, and stay where I am. Or move to a newer apartment with laminate floors, fresh counters, cupboards and appliances, and automatic doors! And an indoor pool, can’t forget that. I want, I want, I want.

I know something’s not right in my world when over in my “category” list my Health posts far outweigh my Music posts. Sigh.

I was starting to work on another 101 List but I’ve already completed a couple of them (taking an excursion downtown with my power chair, finding a way to get back in the pool). I may keep those on the list anyway and be able to start it by crossing off a couple of things. I’m not so sure about making another list though, or if I should just write a basic Bucket List. Or NO list. I only completed 54% of my last list, mostly due to not having the independence to get out there and get the stuff done, and hoping for big dreams like “walking to Walmart and back” again. Oh well, I guess it’s good to have big goals and dreams. I just feel like a failure when I don’t accomplish them. Like “lose the excess weight” has been a goal for… HOW many years, now? Since I was… 10? And not even fat? Sigh.

Oh speaking of walking, my least favourite slogan in life is the one being used by the Weekend to End Breast Cancer walks/events in Canada: “Breast cancer is hard. Walking isn’t”. I’m really flabbergasted that an organization like that would use such an insensitive slogan that is offensive to the thousands of people with diseases, injuries, arthritis, etc. who struggle to take just one step if they are able to at all. I recently found out I am not alone in this thinking, as a friend of mine made the website Walking Is Hard and even got some press coverage for it. Way to go Allie!

That was written yesterday. Then my dad showed up and we went for lunch and there was a ton of Monty Python anniversary stuff on TV so I never got to finish!

So TODAY I’m off to the pool. Very soon. I’ve got butterflies in my stomach I’m so excited.

I made another call this morning and finally registered with Meals on Wheels. Something I should have done ages ago, but kept putting it off because I’m a fairly picky eater (don’t like mushrooms, most seafood, little stuff like that which obviously they can’t cater to) and from what I heard from all the seniors at Carewest the food is “gross” and “boring”. So I registered for standard meal service (lunch and hot dinner) 3 days/week. If I HATE it I can stop it. But I think it will be better than the way I feed myself most of the time now, and it’s cheap, and I requested the gluten free diet which will cut out the baked goods/desserts and be gentle on my system which acts up once in awhile from wheat-y stuff. She also said they’d cut up my food for me when I mentioned I only have use of one hand! I won’t get local/organic foods out of them but I have to take what I can get, right? I can still place my orders with Spud for snacks and replace MoW apples with my organic ones.

I’m still on Twitter, but I keep changing who I follow. I discovered, *newsflash*, that a lot of beautiful/famous people are boring as hell and can’t spell, and all the “your” instead of “you’re” gets on my nerves after awhile, (and no, it’s not that they’re trying to keep it under 140 characters) so I stopped following a bunch. Including the guy I mentioned a few entries ago. I still follow every writer from The Office I can find. Oh, and Christina Applegate is NOT one of the stupid beautiful people. LOVE her. I unfollowed people I also have on Facebook who use software to update both statuses at the same time, too many repeats. Except Rob Szabo and Peter Katz, I don’t have the heart to unfollow them. I try to keep my following list around 100 but there are so many updates it’s hard to keep up. And if Louise Hay tweets something meaningful it gets lost in a sea of funny stuff and doesn’t really register. Sometimes I do wish I had stuck to my “I WILL NEVER TWITTER!” declaration.

But I also like seeing “I’ll be on Leno (Letterman, Kimmel, Conan, Fallon, Ferguson, name your talk show) tonight” so I know what to set my PVR for!